John and Aileen Crowley, and their children, John Jr., Megan, and Patrick, have been chasing miracles of modern disease. In 1998, Megan and Patrick were both diagnosed with Pompe, a rare and often fatal genetic disorder. Determined to find scientists who could develop a replacement enzyme that would keep his children alive, Crowley quit his job as a financial consultant and invested himself and his life savings in a biotech start-up, Novazyme Pharmaceuticals. Genzyme acquired Novazyme for $137.5 million, but the story doesn’t end there… Today, John is the President and CEO of Amicus Therapeutics and lives in Cranbury, NJ, with his family. More information and online registration is here.