Comments on: Vertex Drug Could Be “Man on the Moon” for Cystic Fibrosis Therapy, Says Researcher Bonnie Ramsey http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/ Business + Technology in the Exponential Economy Sat, 11 Feb 2012 09:14:03 +0000 hourly 1 http://wordpress.org/?v=3.0.4 By: SM http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-512672 SM Mon, 14 Nov 2011 20:27:51 +0000 http://www.xconomy.com/?p=36732#comment-512672 I'm 43 and I have the delta F508 mutation. My lung function has declined a LOT in the past 10 years. These drugs are very promising and I am hopeful that it will improve my quality of life. Keep up the good work! I’m 43 and I have the delta F508 mutation. My lung function has declined a LOT in the past 10 years. These drugs are very promising and I am hopeful that it will improve my quality of life. Keep up the good work!

]]> By: Jan Johnson http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-83680 Jan Johnson Fri, 25 Sep 2009 15:22:55 +0000 http://www.xconomy.com/?p=36732#comment-83680 My niece has CF and after a lung transplant is not doing well. She is 22 years old and in ICU on a breathing machine. Depending on which mutation she has is there any way she could benefit from the clinical trials? This is a last resort so please let me know if there is any hope for her. My niece has CF and after a lung transplant is not doing well. She is 22 years old and in ICU on a breathing machine. Depending on which mutation she has is there any way she could benefit from the clinical trials? This is a last resort so please let me know if there is any hope for her.

]]> By: Jennifer Dean http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-79730 Jennifer Dean Fri, 04 Sep 2009 21:52:11 +0000 http://www.xconomy.com/?p=36732#comment-79730 I am a CF parent and unfortunetly we lost our daughter to CF at the age of 2. I am still very active in the fundraising and stay up to date on all of the accomplishments that have been made. I hope and I know deep down that Vertex will be the CURE. I command all of you that are affected by this diesase and all of the parents, freinds, and families that stand behind and supprt all of this research. God Bless to all ! I am a CF parent and unfortunetly we lost our daughter to CF at the age of 2. I am still very active in the fundraising and stay up to date on all of the accomplishments that have been made. I hope and I know deep down that Vertex will be the CURE. I command all of you that are affected by this diesase and all of the parents, freinds, and families that stand behind and supprt all of this research.

God Bless to all !

]]> By: Jennifer Dean http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-79729 Jennifer Dean Fri, 04 Sep 2009 21:49:02 +0000 http://www.xconomy.com/?p=36732#comment-79729 I am a CF parnet, unfortunetly we lost our daughter at the age of 2 who also was battling CF. I am still very active in fundraising and staying up on all of the accomplishments that have been made. Vertex, I know this is a great leap in the CF community and I comand all that this will work for and I suppoort all and everyone that is out there fighting. I am behind all of you and best of luck to all. Hope and thoughts are going out to all. God Bless ! I am a CF parnet, unfortunetly we lost our daughter at the age of 2 who also was battling CF. I am still very active in fundraising and staying up on all of the accomplishments that have been made. Vertex, I know this is a great leap in the CF community and I comand all that this will work for and I suppoort all and everyone that is out there fighting. I am behind all of you and best of luck to all. Hope and thoughts are going out to all.

God Bless !

]]> By: Brandon B http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-79673 Brandon B Fri, 04 Sep 2009 14:11:17 +0000 http://www.xconomy.com/?p=36732#comment-79673 I have CF. I am a 25 yr old college senior, kinda old to still be a college student, but trips to the hospital makes it hard to continue the course. I live in Houston is there research being done around here? I am all for donating my time to help the others who have CF, because I know we are all sick and tired of taking all those pills and breathing treatments!!! Note to all the CF fishermen: Good way to tell if your fishing spot has fish that are feeding, take a good couple of deep coughs spit the mucus in the lake. If the mucus is gone before you can cough up more, throw in, you are going to catch alot of fish! I have CF. I am a 25 yr old college senior, kinda old to still be a college student, but trips to the hospital makes it hard to continue the course. I live in Houston is there research being done around here? I am all for donating my time to help the others who have CF, because I know we are all sick and tired of taking all those pills and breathing treatments!!!
Note to all the CF fishermen: Good way to tell if your fishing spot has fish that are feeding, take a good couple of deep coughs spit the mucus in the lake. If the mucus is gone before you can cough up more, throw in, you are going to catch alot of fish!

]]> By: jill marchione http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-77767 jill marchione Wed, 26 Aug 2009 15:55:55 +0000 http://www.xconomy.com/?p=36732#comment-77767 My son has the G551D Mutation, we are currently waiting to start the trial at CHOP.I cant tell you how excited we are. for years we have watched promising treatments turn out to be nothing. But we have real hope with VX770! My son has the G551D Mutation, we are currently waiting to start the trial at CHOP.I cant tell you how excited we are. for years we have watched promising treatments turn out to be nothing. But we have real hope with VX770!

]]> By: Alfred arayza http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-77644 Alfred arayza Wed, 26 Aug 2009 11:32:11 +0000 http://www.xconomy.com/?p=36732#comment-77644 i am a kid with cf.I am 15 and hearing about the cure makes me very happy cuz i want to be normal not haveing to take pills all the time I HOPE THEY FIND A CURE. i am a kid with cf.I am 15 and hearing about the cure makes me very happy cuz i want to be normal not haveing to take pills all the time I HOPE THEY FIND A CURE.

]]> By: Luis Carrillo http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-76216 Luis Carrillo Thu, 20 Aug 2009 14:26:14 +0000 http://www.xconomy.com/?p=36732#comment-76216 My son has CF, he is 8 years old, at the begining, we did not know what this disease was, its been very hard for us to accept that his life is threaten. Its been a new life since two months ago, we hope for the cure or more medical treatments soon, I'm sure doctors are working hard to find it. And, not only 30,000 patients in the US are waiting but all of their families as well. Thank very much. My son has CF, he is 8 years old, at the begining, we did not know what this disease was, its been very hard for us to accept that his life is threaten. Its been a new life since two months ago, we hope for the cure or more medical treatments soon, I’m sure doctors are working hard to find it. And, not only 30,000 patients in the US are waiting but all of their families as well. Thank very much.

]]> By: Brenda Friend http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-75735 Brenda Friend Tue, 18 Aug 2009 19:40:14 +0000 http://www.xconomy.com/?p=36732#comment-75735 I want to thank Dr. Ramsey, the CF Foundation and everyone involved in this drug research. Dr. Ramsey was my daughter's physician 26 years ago. It's great to have her working diligently on saving our children/adults, and being so encouraging to the rest of us! Bonnie, your Kodiak baby girl says hello and is doing well. She's teaching 2nd grade and trying to stay healthy. We appreciate all of your hard work and know you'll get this kicked for us! I want to thank Dr. Ramsey, the CF Foundation and everyone involved in this drug research. Dr. Ramsey was my daughter’s physician 26 years ago. It’s great to have her working diligently on saving our children/adults, and being so encouraging to the rest of us! Bonnie, your Kodiak baby girl says hello and is doing well. She’s teaching 2nd grade and trying to stay healthy. We appreciate all of your hard work and know you’ll get this kicked for us!

]]> By: Andrew Kolodziej http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-75461 Andrew Kolodziej Mon, 17 Aug 2009 18:11:14 +0000 http://www.xconomy.com/?p=36732#comment-75461 This is truly walking on the moon. The CF foundation has been the NASA for this endeavor--funding research to improve antibiotic treatment, creating the development network to test therapies and spread best practices has had a huge impact, bringing all CF families together to share experience and knowledge, and funding companies like Vertex, Aurora, Inspire and EPIX to find cures to the underlying problem. There is good reason to hope that there will be a cure or at least a significant ameliorative soon. This is truly walking on the moon. The CF foundation has been the NASA for this endeavor–funding research to improve antibiotic treatment, creating the development network to test therapies and spread best practices has had a huge impact, bringing all CF families together to share experience and knowledge, and funding companies like Vertex, Aurora, Inspire and EPIX to find cures to the underlying problem. There is good reason to hope that there will be a cure or at least a significant ameliorative soon.

]]> By: BRANDY HARPER http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-75454 BRANDY HARPER Mon, 17 Aug 2009 16:29:30 +0000 http://www.xconomy.com/?p=36732#comment-75454 I SIT HERAR CRYING THANKING THE GREAT SPIRIT,I HAVE 2 CHILDREN WITH CF AND THIS WONDERFULL.COUNT YOUR BLESSINGS PPL I SIT HERAR CRYING THANKING THE GREAT SPIRIT,I HAVE 2 CHILDREN WITH CF AND THIS WONDERFULL.COUNT YOUR BLESSINGS PPL

]]> By: cecilia http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-75420 cecilia Mon, 17 Aug 2009 03:39:06 +0000 http://www.xconomy.com/?p=36732#comment-75420 yo tengo tres hijos con fibrosis quistica, y mi duda es , si ya estamos cerca de algo mas prometedor para los homocigotos deltaf508.gracias yo tengo tres hijos con fibrosis quistica, y mi duda es , si ya estamos cerca de algo mas prometedor para los homocigotos deltaf508.gracias

]]> By: Kevin Chow http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-74281 Kevin Chow Tue, 11 Aug 2009 05:39:20 +0000 http://www.xconomy.com/?p=36732#comment-74281 Nice article. It would be worthwhile pointing out that there is another potential therapeutic for aiding mucus clearance in CF patients being developed by Gilead's pulmonary R&D group based right here in Seattle. It's a collaborative effort with Parion Sciences of Durham, NC and currently it is in Phase 1 clinical studies. Nice article. It would be worthwhile pointing out that there is another potential therapeutic for aiding mucus clearance in CF patients being developed by Gilead’s pulmonary R&D group based right here in Seattle. It’s a collaborative effort with Parion Sciences of Durham, NC and currently it is in Phase 1 clinical studies.

]]> By: Donna http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-74194 Donna Sun, 09 Aug 2009 14:06:33 +0000 http://www.xconomy.com/?p=36732#comment-74194 My daughter is going to be 38 years old in January. I've been involved with CF for a long time! The research and trials are exciting, but in the mean time we have to keep our children as healthy as possible. I am involved with a product called Juice Plus+. Nutrition is so important for our health. The studies show that Juice Plus+ can give you the fruits and vegetables that you are missing in your diet. JP+ increases blood antioxidant levels in 28 days, it strengthens the immune system, repairs damaged DNA and protects DNA from free radical damage. We need to get our CF patients on this whole food based nutrition. One of my colleagues daughter's pulmonary function went from 25% to 40% after being on JP+ orchard/garden and Vineyard blend. Look at my web site and see all the research and science that have been peer reviewed and published in medical journals. See what the experts are saying. For more information please contact me at anglequeen1@aol.com or call me at 847/680-4860. Good health to all! My daughter is going to be 38 years old in January. I’ve been involved with CF for a long time! The research and trials are exciting, but in the mean time we have to keep our children as healthy as possible. I am involved with a product called Juice Plus+. Nutrition is so important for our health. The studies show that Juice Plus+ can give you the fruits and vegetables that you are missing in your diet. JP+ increases blood antioxidant levels in 28 days, it strengthens the immune system, repairs damaged DNA and protects DNA from free radical damage. We need to get our CF patients on this whole food based nutrition. One of my colleagues daughter’s pulmonary function went from 25% to 40% after being on JP+ orchard/garden and Vineyard blend. Look at my web site and see all the research and science that have been peer reviewed and published in medical journals. See what the experts are saying. For more information please contact me at anglequeen1@aol.com or call me at 847/680-4860. Good health to all!

]]> By: Marla http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-73944 Marla Sat, 08 Aug 2009 04:20:49 +0000 http://www.xconomy.com/?p=36732#comment-73944 Praise God! Keep the research going, my two girls need it! Praise God! Keep the research going, my two girls need it!

]]> By: walkforgrace.com » Vertex Drug Could Be “Man Walking on the Moon” for Cystic Fibrosis Treatment http://www.xconomy.com/national/2009/08/07/vertex-drug-could-be-man-walking-on-the-moon-for-cystic-fibrosis-treatment-says-seattle-researcher-bonnie-ramsey/comment-page-1/#comment-73792 walkforgrace.com » Vertex Drug Could Be “Man Walking on the Moon” for Cystic Fibrosis Treatment Fri, 07 Aug 2009 14:34:21 +0000 http://www.xconomy.com/?p=36732#comment-73792 [...] ran across this article today and thought it really showed how far CF treatment has come in recent years. It’s a [...] [...] ran across this article today and thought it really showed how far CF treatment has come in recent years. It’s a [...]

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