Comments on: Vertex’s Telaprevir Passes Test in Tough-To-Treat Hepatitis C Patients

By: Dave

Dave — Sun, 22 Nov 2009 18:08:03 +0000

Hi Ron,
Iam four years post liver transplant. I tried Pegylated interferon and Ribovrian prior to transplant. I was cear at one year, but the virus returned at six months. Three years after transplant the viral load was very high. After two months on Interferon and Ribovrian there was only a trace of virus, but I was unable to to tolorate the side effects. I would be very interested in more information on this new treatment.
Thank you.
Dave

By: Donny Widyatmoko

Donny Widyatmoko — Fri, 20 Nov 2009 06:20:02 +0000

Hi Ron,
I got a hep c and have a anti virus (copegus) and pegylated interferon for 3 month. I got a low platelets in the progress and start to bleed. My doctor said, if I got a lower platelets, the dosage of the drugs should be decrease (some patients will have a hep c again in the future when decrease it’s dosage). So, I fight to my platelets.
Since I was a kid, I was told that guava is a best food for my blood. I tried to eat guava and to drink it’s juice every day.
Thks to God, now I got a normal platelets again and my medication still on going.
I believe God always gives our best.
bstrgds

By: Ron A

Ron A — Wed, 18 Nov 2009 15:58:06 +0000

I have tryed interferon twice. failed both times because of low platlets. I would like to try this also. I am starting a trail of eltrombopag this may be good to do both at the same time.
Regards

By: Luke Timmerman

Luke Timmerman — Tue, 17 Nov 2009 19:23:53 +0000

Shirley,

Here’s the Vertex clinical trial information toll free hotline, which should be up to date. You can also send an email to the following address:

877-634-8789 or medicalinfo@vrtx.com.

Vertex has said publicly that it plans to file its application for FDA approval to start selling telaprevir in the second half of 2010, as indicated in the link below. It will be up to the FDA if or when the drug ever becomes available commercially. The agency typically takes 10 months to review an application.

http://biz.yahoo.com/e/091109/vrtx10-q.html

Luke

By: SHIRLEY HARRIS

SHIRLEY HARRIS — Tue, 17 Nov 2009 19:02:54 +0000

PLEASE SEND ME MORE INFO ON THIS NEW DRUG FOR HEP C & ALSO PLEASE TELL WHEN IT WILL BE AVALIBLE FOR THE PUBLIC USE. THANKS

By: stephanie sedillo

stephanie sedillo — Tue, 27 Oct 2009 22:42:36 +0000

would like to be update for your e-mail news on vx-950 for hep c.

By: laura brown

laura brown — Tue, 27 Oct 2009 18:15:32 +0000

i have chronic hep c and cerrohsis i had 2 courses of interpheron therapy and i was a non responder.my platelet count is 37000 at this time i would like to be in trials
dr. said i might have itp. thanks laura

By: Malikaz

Malikaz — Mon, 26 Oct 2009 14:10:12 +0000

I have Hep C, Geno Type 1 since 2004 from a bad blood transfussion after giving operational birth to my baby. The blood transfussion was found to contain hep.B virus and I undergone an operation on my liver. I would like your advice on the treatment at my present state. I have done the RNA test and confirm to have Hep. C genotype 1 this month October 2009. My age is 24 years old.
Please Help. Contact me by e-mail.

By: Jeff

Jeff — Tue, 20 Oct 2009 20:08:34 +0000

I have Hep C and,would like to find a way to be on the Telaprevire.Please contact me on how to be included.All the care I will get is through the VA.

By: Mark

Mark — Fri, 09 Oct 2009 02:27:11 +0000

I have had hepatitis c for 20 years. After having two liver transplants I still can’t get rid of my virus. I have tried everything. Hopefully I would like to take this new medication.

By: donny

donny — Tue, 29 Sep 2009 08:01:31 +0000

I have 5 weeks peg interferon + ribavirin treatment against Hep C. Genotype still on process to findout.
Please give me some info’s regarding the medication methods. How to get teleprevir in Indonesia.Thk u

By: Karen

Karen — Thu, 24 Sep 2009 06:20:01 +0000

Just did my 6 month blood test. The virus is still there. I am genotype 1 stage 3. My nurse had mention this treatment to me last Jan. I would like some more info and possible canidate for the treatment.

By: Johan

Johan — Mon, 31 Aug 2009 09:22:44 +0000

I have done 24 weeks of telaprivir and ribivirin ( hep.C, type 1 ). My viruscount is zero and from what I understand the doctors call me ” cured ” when the viruscount is still zero in 1/2 year from now.
During treatment i just missed a few days off work due to calling in sick, though the treatment is tough ( for me ) some go through it without too much side effects.
From my experience i would recommend to try the treatment if you can.

By: wendy

wendy — Mon, 31 Aug 2009 03:24:45 +0000

I was diagnosed in 1998 and have not received treatment. I am about to start the combination treatment in a month and was researching, when I discovered the new drug telaprevir. I have genotype 1, which I understand less than 50% are cured with the current therapy. I am very interested in getting more information on telaprevir and how long until it is in the US and if I should hold off and getting the current treatment.

By: Luke Timmerman

Luke Timmerman — Mon, 03 Aug 2009 21:30:40 +0000

Here are the places to look for current information on clinical trials from the National Institutes of Health, and from Vertex.

NIH: http://www.clinicaltrials.gov/

Vertex:
http://www.vrtx.com/current-projects/Clinical-Trials.html
Phone:
877-634-VRTX (toll free)
617-444-6777

By: Daryl Chazak

Daryl Chazak — Mon, 03 Aug 2009 21:26:42 +0000

I have been following vertex 950 for some years and have been hoping at some point to be included in a clinical trial…. I am not sure who to contact. If possible could you forward me info. Thanks…

By: Bonnie Cunningham

Bonnie Cunningham — Wed, 15 Jul 2009 23:33:03 +0000

We would also like to know how to get on a clinical trail study. I work at a Medical Research Clinic and we cannot find a doctor in this community to be an investgator of a Hep C study. We know a lot of people who have Hep C.
Thank you for your help

By: Gary M.

Gary M. — Wed, 15 Jul 2009 21:16:54 +0000

I would be interested in trying this new drug. The interferon treatments didn’t work for me. I have liver cirrhosis and would like to be considered for a trial. If you can send me any more information it would be appreciated.

By: Bonnie

Bonnie — Tue, 14 Jul 2009 18:45:12 +0000

I am researching some new ideals for my husband who has undergone 2 treatments of traditional therapy. He just received the results for his 6 months check up and they were not good. I would like more information.
Thanks

By: ralph salmon

ralph salmon — Thu, 09 Jul 2009 22:15:25 +0000