Comments on: Vertex Drug for Hepatitis C Shows Durable Virus-Killing Ability in Tough-to-Treat Patients http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/ Business + Technology in the Exponential Economy Sat, 11 Feb 2012 12:29:49 +0000 hourly 1 http://wordpress.org/?v=3.0.4 By: tony perg http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-307106 tony perg Mon, 14 Feb 2011 03:29:05 +0000 http://www.xconomy.com/?p=5976#comment-307106 when will telaprevir be approved for use in u.s.a. ? when will telaprevir be approved for use in u.s.a. ?

]]> By: Daniel Finnan http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-264682 Daniel Finnan Tue, 07 Dec 2010 16:06:41 +0000 http://www.xconomy.com/?p=5976#comment-264682 I have undergone 21 weeks on pegases 1 and two but had an alergic reaction by the 21st week.I broke out in hives,had phscological difficulties and was taken off in 2010.My viral count has doubled since.It would be great if I were to be concidered for the Vertex study. I have undergone 21 weeks on pegases 1 and two but had an alergic reaction by the 21st week.I broke out in hives,had phscological difficulties and was taken off in 2010.My viral count has doubled since.It would be great if I were to be concidered for the Vertex study.

]]> By: Ray Carsjens http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-100625 Ray Carsjens Mon, 21 Dec 2009 20:04:52 +0000 http://www.xconomy.com/?p=5976#comment-100625 I have went through treatment 2 times. Once in 2001 for 11 months rabivirin and 1 weekly shot, second time shots everyday for 11 months with pills, and still had to be taken off just short of completeing TX, with a viral load of millions of millions. I am waiting to start Vertex pills Jan 4 2010, please anybody email me if you have tried these tabs, I want to know side effects ect. 661 366 3089 I went through hell both times in Treatment.? Love you all God be with all fof Us. Thanx Ray I have went through treatment 2 times. Once in 2001 for 11 months rabivirin and 1 weekly shot, second time shots everyday for 11 months with pills, and still had to be taken off just short of completeing TX, with a viral load of millions of millions. I am waiting to start Vertex pills Jan 4 2010, please anybody email me if you have tried these tabs, I want to know side effects ect.
661 366 3089 I went through hell both times in Treatment.? Love you all God be with all fof Us. Thanx Ray

]]> By: Tina Myer http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-89972 Tina Myer Mon, 02 Nov 2009 05:02:00 +0000 http://www.xconomy.com/?p=5976#comment-89972 Just wish to point some of you in the right direction. Getting into a trial can be most certainly a life altering experience. Some members in our forum have been in the Vertex Trial and have cleared the virus / still clear 6 months after completing treatment or SVR. Cured by some standards. You may wish to talk to our friends in our chat room or on our message boards. If you go to our "Treatment Stories" Section of our site you will be able to follow some of these people. Because we have so many people clearing the virus on standard HCV therapy and new therapies not all of them are documented on our web site. Our site has been around since 2001 and I myself cleared the virus SVR in a trial back in 1999. We have more then a few people that have treated successfully with the New Inhibitors since 2008. Some of these people are even in the follow up studies. Hope we can help Tina @ Janis and Friends Web Site and Blog http://janis7hepc.com/index.htm http://hepatitiscnewdrugs.blogspot.com/ Hepatitis C/Swine Flu/ H1n1 / The Information Just wish to point some of you in the right direction.
Getting into a trial can be most certainly a life altering experience.
Some members in our forum have been in the Vertex Trial and have cleared the virus / still clear 6 months after completing treatment or SVR. Cured by some standards.

You may wish to talk to our friends in our chat room or on our message boards.

If you go to our “Treatment Stories” Section of our site you will be able to follow some of these people. Because we have so many people clearing the virus on standard HCV therapy and new therapies not all of them are documented on our web site.

Our site has been around since 2001 and I
myself cleared the virus SVR in a trial back in 1999.

We have more then a few people that have treated successfully with the New Inhibitors since 2008. Some of these people are even in the follow up studies.

Hope we can help

Tina @ Janis and Friends Web Site and Blog

http://janis7hepc.com/index.htm
http://hepatitiscnewdrugs.blogspot.com/

Hepatitis C/Swine Flu/ H1n1 / The Information

]]> By: Luke Timmerman http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-65701 Luke Timmerman Tue, 16 Jun 2009 21:23:48 +0000 http://www.xconomy.com/?p=5976#comment-65701 Here are a couple of places to look for updated information on hepatitis C clinical trials. NIH database on clinical trials: http://clinicaltrials.gov/ Vertex: http://www.vrtx.com/current-projects/Clinical-Trials.html Phone: 877-634-VRTX (toll free) 617-444-6777 Here are a couple of places to look for updated information on hepatitis C clinical trials.

NIH database on clinical trials:
http://clinicaltrials.gov/

Vertex:
http://www.vrtx.com/current-projects/Clinical-Trials.html

Phone:
877-634-VRTX (toll free)
617-444-6777

]]> By: Faith Jewett http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-65700 Faith Jewett Tue, 16 Jun 2009 21:19:41 +0000 http://www.xconomy.com/?p=5976#comment-65700 Please send me information on Telaprevir thank you Please send me information on Telaprevir thank you

]]> By: john ferrante http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-60634 john ferrante Thu, 28 May 2009 14:38:44 +0000 http://www.xconomy.com/?p=5976#comment-60634 Approximately 4 years ago I went through a 7 month interferon bout with no visible success. I do drink moderately and after the unsuccessful bout with interferon I began drinking again. I since have quit drinking and would be game for trying telaprevir for study. I am told by my doctor that my Hepatitis C is a tough kill. Like to find out if that's true. Approximately 4 years ago I went through a 7 month interferon bout with no visible success. I do drink moderately and after the unsuccessful bout with interferon I began drinking again. I since have quit drinking and would be game for trying telaprevir for study. I am told by my doctor that my Hepatitis C is a tough kill. Like to find out if that’s true.

]]> By: Eric Gustafson http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-57779 Eric Gustafson Wed, 13 May 2009 22:28:09 +0000 http://www.xconomy.com/?p=5976#comment-57779 Hi Luke, Thanx for your reports regarding Telaprevir. Perhaps I could be of assistance in the proving of this new product. I am a 54 year old male who was diagnosed with HepC Type 1A in October of 2006. High viral counts are evidence that the virus has been active in my system for many years. Since discovery of my ailment I have been reporting to my gatrointestinal specialist regularly 4 times a year for a blood draw and analysis. A liver biopsy in November of 06 revealed minimal damage with no bridging and ultra sounds reveal nothing worthy of remark. Blood draw of 2/5/09 indicated ALT of 47 Viral count: HCV RNA PCR was 3,160,000 IU/ml 6,320,000 copy/ml. I have received no treatment to date aside from 2 months of Ursodiol, observation and total abstinence from alcohol. I can be contacted by email should I be considered a valuable candidate for study. Sincerely, Eric Gustafson Hi Luke,

Thanx for your reports regarding Telaprevir.
Perhaps I could be of assistance in the proving of this new product. I am a 54 year old male who was diagnosed with HepC Type 1A in October of 2006. High viral counts are evidence that the virus has been active in my system for many years. Since discovery of my ailment I have been reporting to my gatrointestinal specialist regularly 4 times a year for a blood draw and analysis. A liver biopsy in November of 06 revealed minimal damage with no bridging and ultra sounds reveal nothing worthy of remark.

Blood draw of 2/5/09 indicated ALT of 47
Viral count: HCV RNA PCR was 3,160,000 IU/ml
6,320,000 copy/ml.

I have received no treatment to date aside from 2 months of Ursodiol, observation and total abstinence from alcohol.

I can be contacted by email should I be considered a valuable candidate for study.

Sincerely,
Eric Gustafson

]]> By: Karla Lair http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-57722 Karla Lair Wed, 13 May 2009 15:57:40 +0000 http://www.xconomy.com/?p=5976#comment-57722 Hello, My name is Karla, I was diagnosed with Hepc in 2000 while pregnant with my son, you can imagine how devastating that was for me, I went into a deep depression for a few years in denial and finally underwent treatment with interferon and ribavarin. Unfortunately, it was no help. I live in Cedar Hill, TX and I would like to become a candidate for the trial drug. Thankyou for any help you can offer me. Hello, My name is Karla, I was diagnosed with Hepc in 2000 while pregnant with my son, you can imagine how devastating that was for me, I went into a deep depression for a few years in denial and finally underwent treatment with interferon and ribavarin. Unfortunately, it was no help. I live in Cedar Hill, TX and I would like to become a candidate for the trial drug. Thankyou for any help you can offer me.

]]> By: Daniel Finnan http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-55952 Daniel Finnan Mon, 04 May 2009 03:14:33 +0000 http://www.xconomy.com/?p=5976#comment-55952 Hi,My name is Dan and I've had Hep c since 1995.I've never been treated accept for taking colodial silver for the desease.I am a 49 year old male and would like to volunteer for the study. Thank you for your consideration. Hi,My name is Dan and I’ve had Hep c since 1995.I’ve never been treated accept for taking colodial silver for the desease.I am a 49 year old male and would like to volunteer for the study. Thank you for your consideration.

]]> By: Sam Carroll http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-52222 Sam Carroll Sun, 29 Mar 2009 20:50:11 +0000 http://www.xconomy.com/?p=5976#comment-52222 Sam, Hi I just finished my 12 week on Interfearon, after blood work results I'm told my viral load # is out of range & was discontiued from treatment. In twelve weeks it went down from 423,000 to 97,000 still not good enough for them, Right now I still have three week of medicine left, And plan on taking that untill gone. So both Ribivin & pegasys are still at full strenth in my system, I think that I would be an excellant canidate for your Vertex study, Thank you for any help you can give me............. Sam, Hi I just finished my 12 week on Interfearon, after blood work results I’m told my viral load # is out of range & was discontiued from treatment. In twelve weeks it went down from 423,000 to 97,000 still not good enough for them, Right now I still have three week of medicine left, And plan on taking that untill gone. So both Ribivin & pegasys are still at full strenth in my system, I think that I would be an excellant canidate for your Vertex study, Thank you for any help you can give me………….

]]> By: Bob http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-42764 Bob Sat, 13 Dec 2008 13:17:52 +0000 http://www.xconomy.com/?p=5976#comment-42764 Hi My name is Bob,I am a Pastor and I have Hep C. I would be willing to volunteer for the study. I don't drink or smoke and I have never had therapy before. I am 55 years old. Thank you for you consideration. Bod Hi
My name is Bob,I am a Pastor and I have Hep C. I would be willing to volunteer for the study. I don’t drink or smoke and I have never had therapy before. I am 55 years old. Thank you for you consideration. Bod

]]> By: zahid http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-37181 zahid Tue, 04 Nov 2008 04:24:18 +0000 http://www.xconomy.com/?p=5976#comment-37181 my friends wife is suffring with hapatitis c since last five years,she took interfran injection course also but after that her hepatitis c lab report is still positive.plz help her in this regard ,how she can get vertex drug as she livs in pakistan,and i want to know more about this,thanks, my friends wife is suffring with hapatitis c since last five years,she took interfran injection course also but after that her hepatitis c lab report is still positive.plz help her in this regard ,how she can get vertex drug as she livs in pakistan,and i want to know more about this,thanks,

]]> By: jim http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-37039 jim Sun, 02 Nov 2008 19:20:56 +0000 http://www.xconomy.com/?p=5976#comment-37039 i also would like to volunteer for the study. i have been doing the trials since 1995 i also would like to volunteer for the study. i have been doing the trials since 1995

]]> By: vera groves http://www.xconomy.com/boston/2008/11/01/vertex-drug-for-hepatitis-c-shows-durable-virus-killing-ability-in-tough-to-treat-patients/comment-page-1/#comment-36973 vera groves Sun, 02 Nov 2008 03:42:28 +0000 http://www.xconomy.com/?p=5976#comment-36973 hi my name is vera and I have hep c and I have toke all the treatment there is and it did not help so I hope that I can get this study and try it so please give me all help that you can with that vertex I would like try it . hi my name is vera and I have hep c and I have toke all the treatment there is and it did not help so I hope that I can get this study and try it so please give me all help that you can with that vertex I would like try it .

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