Comments on: Vertex Fending Off Competitors By Treating the Toughest Patients With Hepatitis C

By: Jane

Jane — Mon, 16 Aug 2010 23:32:05 +0000

Hi to all who are waiting…I have been watching the stats on this drug for over 5 years and its very exciting to think its getting closer. Fast track for us is to slow for most of us…I hope I can stay stable until we get the green light to go. Our insurance coverage will not cover drugs until they are approved by the FDA…I just saw 2011′ and I thought the last time I called to Vertex they said last quarter of 2010. Hurry up to wait…Keep looking up and pray that all out there will be able to be able to clear the virus. We have to hang in….

By: Greg

Greg — Tue, 29 Jun 2010 02:23:19 +0000

I have been fighting this for 20 plus years now and would love to see this be approved I feel its my last hope for all other treatments that Ive done have failed.

By: Jasper

Jasper — Wed, 19 May 2010 08:22:23 +0000

Dear Dr. Kauffman,
I remember contacting Vertex 9 years ago and I inquired about one of your early protease inhibitor. I cannot remember the name but it was something with a V and I believe a 6 was in the sequential numbers.

Please, my point is that I was a FF and exposed to HCV and developed an autoimmune disease where if affects my autonomic and sensory nervous systems.

I have tried interferon by itself as well as Interferon with ribavirin and my viral loads went down some and then back up into the millions but I never did clear the virus. Since then I have an internal pain pump with dilaudid which caused a granduloma in my spine so now I am back on large doses of oral meds with all of the side effects. My digestive tract does not function without large amounts prescription laxatives as the nerves fail to dilate my intestines. Needless to say I have some debilitating problems which are progressing.

Sir, I am asking you to PLEASE get this product approved by the FDA and inform all of the HCV patients in the USA, as well as the rest of the world, as how we can help you by lobbing our politicians at the federal level.

Yes, you are well ahead of the bigger money pharms and they should not hinder the process so once again, PLEASE let us help as well!

Thanks, be strong and HELP us,
Jasper

By: Maria Becker

Maria Becker — Wed, 02 Sep 2009 14:36:56 +0000

My husband tried to get into this clinical trial but he was already on Interferon for the 3rd time so they wouldn’t take him in… Please hurry and get it on the market, we would have been willing to pay if it meant he could have gotten into this study. We have heard all good things about it.

By: Luke Timmerman

Luke Timmerman — Sat, 25 Jul 2009 01:48:33 +0000

Patients who want up-to-date information on Vertex clinical trials can check here.

http://www.vrtx.com/current-projects/Clinical-Trials.html
Clinical Trials & Medical Information:
Phone:
877-634-VRTX
617-444-6777

For information on other open clinical trials for Hepatitis C, check here:

http://clinicaltrials.gov/

By: JAMES T LAWSON

JAMES T LAWSON — Sat, 25 Jul 2009 01:11:23 +0000

HOW CAN I GET INTO ONE OF THESE CLINICAL TESTS,MY SON WHO LIVES IN THAILAND FAILED IN THE FIRST COURSE OF TREATMENTS AND REFUSES ANYTHING THAT MADE HIM FEEL AS MISERABLE AS HE DID FOR 48 WEEKS.

By: Janet A

Janet A — Sun, 12 Jul 2009 12:54:23 +0000

Stop playing politics with our lives! I didn’t respond as well as hoped with the 48 week treatment and am borderline cirrohis. I need this as well as thousands of patients like me. I would be more than willing to be a guinea pig. I live in fear every time I go to the doctor that my options are getting fewer, but with this treatment, I have tremendous hope for a cure…but the politics! Vertex…please push this thru!

By: barry senn

barry senn — Wed, 01 Jul 2009 02:47:01 +0000

If there is any way to be a guinea pig in these studies, please someone let me know. thanx Barry in Oregon

By: Vickie Soriano

Vickie Soriano — Sat, 21 Feb 2009 20:14:47 +0000

The FDA are the ones who need to fast track this to approval. I have been watching this for a couple of years now and it looks to me like Vertex is doing everything they can to get this out as quickly as possible. I also understand their caution. We do live in a sue happy society. They need to play by the rules and dot their i s and cross their t s. I am just grateful there is hope on the horizon.

By: hepatitis c - racing to treat the untreatable « nuts for healthcare: a healthcare blog

Mon, 19 Jan 2009 09:35:44 +0000

[...] biotech firm, Vertex Pharmaceuticals (in collaboration with Tibotec, Johnson & Johnson). They threw all chips on the table when they declared in Aug. 2008 that they would begin a 650-patien… which would target patients who didn’t initially respond to treatment, who responded only [...]

By: steph

steph — Sun, 30 Nov 2008 02:02:32 +0000

Any free studies available to get into please?
Any info. would be appreciated

By: Vicki DeWitt

Vicki DeWitt — Sat, 15 Nov 2008 03:18:35 +0000

If Vertex new hcv drug has already shown so much potential, isn’t there a way to get it approved sooner?

By: Paul

Paul — Thu, 23 Oct 2008 04:37:10 +0000

I guess the drug companies have a dilema! They are currently making billiions of dollars on some people being cured. They are also invested rescue drugs that are required by many doing tx due to reduced white and red blood cell indicators. Now many txers are exending to do 72 weeks which means more units sold. Makes you wonder how hard they’re trying, if a cure is found, that gravy train crashes immediately. My sense is that vertex is pushing like crazy because they’re not so heavily invested in current tx regimes like Roche and Schering-Plough.

By: ejbSF

ejbSF — Mon, 15 Sep 2008 04:44:40 +0000

For those of us in need – some desperate – for new HCV treatments, this song and dance of study after study for market positioning is just wrong. Telepravir works for a lot of people who haven’t responded to previous treatments. GET IT OUT THERE, VERTEX! LIVES ARE ON THE LINE!

By: Vertex Pharma: Lauded for “Tackling Toughest Hep C Non-Responders” with its Teleprevir Candidate. . . . «

Tue, 09 Sep 2008 15:18:08 +0000

[...] Hep C drug candidate is extending over the Schering drug candidate, boceprivir — do go read it all, but here’s a salient [...]

By: H Blower

H Blower — Tue, 09 Sep 2008 06:48:30 +0000

Any treatment that has high % of cure without the dreadful side affects leaving one worse than before with or without the disease would be welcome that is a fact