Comments on: Biogen Idec Testing Regenerative Medicine Drug to Reverse the Path of Multiple Sclerosis

By: Kathy Olson

Kathy Olson — Tue, 28 Jun 2011 02:58:14 +0000

Today’s date is 6/27/2011

JUST found this site. My last visit to my Dr; he mentioned “anti-lingo” is a possible new drug coming, that could really help me. So, I googled it tonight and found this post.
ANYTHING on the internet to tell me “what’s the latest” regarding anti-lingo ?
I sure want to take this or at least be apart of a trial group. Have had PP MS for 20 years so have LOTS of needed remyelination !!!!!!!!!

By: john dery

john dery — Mon, 21 Feb 2011 19:01:19 +0000

i,like many ,have tried everything to keep my ms in check ,but what i would’nt give for the old carefree romps down montain trails

By: Jenni

Jenni — Mon, 06 Sep 2010 16:03:30 +0000

This is by far some of the best news I have ever heard. I am going to be 40 in October and have been living with this (what I call) a total nuisance and pain in the behind disease. Just like alot have said ” Why does it take so long to approve a medicine that is going to turn around the lives of many people.} There should be a cure anyway!!!! Hoping that by the time I am 45 hopefully sooner there will be a cure. In 3-5 yrs they are coming out with the cure for diabetes, Lupus and Chrone’s disease. All same types of this MS. It should be on that list. Don’t ya think…………..

By: Stephen P. Stanko

Stephen P. Stanko — Sun, 22 Feb 2009 17:54:37 +0000

I will ask again WHAT IS THE HOLD UP??
I have seen the same message before,and no word of progress!
I thought GWB lost he election.
Time is not on anyone with MS’s side. Light a candle under someones A..

By: Danny Rexrode

Danny Rexrode — Sun, 22 Feb 2009 16:33:47 +0000

I would like to be a participant in this trial. I have no mobility in both of my legs and am in a wheelchair full time. I also suffer cognitive problems. I am currently using Tysabri and it is helping me from getting any worse, but, I really want to participate in this new trial. Please consider me for this trial.

By: RAÚL BRAVO

RAÚL BRAVO — Sat, 24 Jan 2009 02:48:18 +0000

Estimados Señores

Mi nombre es Raúl Bravo, tengo 41 años y sufro de Paraparesia Espástica, instancia por a que me ofrezco para experimentar con el nuevo medicamento propuesto. Lo anterioir porque tengo dos niños pequeños que necesito aun cuidar, por lo menmos hasta que se valgan más por si mismos.

Raúl Bravo Chile

By: Stephen P. Stanko

Stephen P. Stanko — Tue, 14 Oct 2008 01:57:09 +0000

What is the hold-up?? Why does everything regarding MS take so long to get moving??

Who do we have to contact? Name,number,and address!

MS does not wait!!

By: Irely

Irely — Sun, 12 Oct 2008 21:21:43 +0000

Just remember me.
I’ll been living with R-R MS for 37 years (I’m 49), still able to move and walk, but going down the drain too fast. I’m using Avonex, which have been great for 8 years since my diagnosis. Can we be included in this tryal?
PLEASE! GIVE ME A CHANCE!

By: Troy Cummings

Troy Cummings — Sun, 12 Oct 2008 21:04:23 +0000

Sign me up I cant Take this MS Thing anymore and the tysabri was doing good for me 14th time i had to try solumedrol to help me out. They need to hurry up on this but its the usa it will be about 10years before they approve it..lol

By: Edward Hom

Edward Hom — Wed, 01 Oct 2008 20:03:25 +0000

This is the trial every MS patient and family member/friend has been waiting for. I’m sure my sister would be willing to sign up. ONE PRAYER – PLEASE MAKE THE TRIAL OPEN TO ALL MS PATIENTS, NOT JUST THE RELAPSING-REMITTING ONES. The PPMS – SPMS patients are literally at death’s door.

God, I hope this works. Phase I …..

By: Lynn Williams

Lynn Williams — Wed, 24 Sep 2008 15:26:59 +0000

I think most anyone who has MS and has had one or two relapses would be willing to be part of the trial. I have been dxed for 8 years now and the last 2 years have really headed down hill. I had one infusioin of Tysabri right before it was pulled off the market but am currently going thru their approval process to get back on it. I was on IVIG and had great results with it but my doctor feels that I may have better results with Tysabri. I just want my life back!

By: Joan Brock

Joan Brock — Fri, 19 Sep 2008 20:11:18 +0000

How wonderful, but what if we are not on any other Biogen drugs? ARE WE ELIMINATED???

By: Wayne Stillerman

Wayne Stillerman — Fri, 19 Sep 2008 13:10:14 +0000

Where do I sign up? My bags are packed and I’m ready to be part of the human clinical trials. I have been contemplating going overseas for a stem cell transplant so maybe I’ll hold off a little to see what comes of this. This is great news!!!!!

By: Karen H

Karen H — Fri, 19 Sep 2008 00:00:19 +0000

Of curse, I’d fight my way to the front of the line – have been dealing with the MonSter for about 30 years but wasn’t officially diagnosed til Nov ’95 about my 50th birthday.

By: MARIA POLICASTRO

MARIA POLICASTRO — Thu, 18 Sep 2008 23:09:05 +0000

I have nad M S for over 50 years this is great news too bad my husband didn’t live to see this I wish you God speed.

By: GLEN WILSON

GLEN WILSON — Thu, 18 Sep 2008 21:55:43 +0000

I HAVE HAD DR. WADEN EMERY IN FT LAUDERDALE FLA (954)771-8300. FOR OVER 9 YEARS HE BEEN THE BEST DOCTOR. MY FIRST DAY I WAS IN HIS OFFICE I WAS IN A WHEELCHAIR. I HAVE BEEN ON Tysabri FOR 10 MONTHS. WHEN I FIRST SEEN HIM THERE WAS NOT MUCH HOPE I WOULD EVER WALK ANYMORE BUT HE TRY EVERYTHING POSSIBLE AND MANY MEDICATIONS TODAY I CAN RIDE A MOTORCYCLE.I STILL HAVE BAD DAYS.BUT THANKS TO HIM I HAVE MANY GREAT DAYS. PS SIGN ME UP

By: Trine Skogsholm

Trine Skogsholm — Tue, 16 Sep 2008 14:05:32 +0000

This was exactly the light in the narrow tunnel we needed. Pls sign me up.

By: Charles Kuhn

Charles Kuhn — Mon, 15 Sep 2008 22:29:37 +0000

Sign me up. I have had M.S. for 14 years. It has claimed my legs. I am luckier than most, but wait for the day to walk again. Running and dancing wouldn’t be bad either!

By: AJ L

AJ L — Wed, 10 Sep 2008 13:18:45 +0000

Oh my God, just show me where to sign, I have gotten to the point where I am looking at a stem cell transplant.

By: Stephen P. Stanko

Stephen P. Stanko — Sun, 07 Sep 2008 18:50:41 +0000

I have primary progressive multiple sclerosis. DX 11 years ago and progressing rapidly now. I would sing up in a minute…put not OPEN LABEL only.